Saturday, November 12, 2011

Home!

After getting news last Sunday that we could bring our precious boy home this week, we scrambled to clean house and get things ready! We also spent most of the day Monday getting various in-services on equipment and CPR classes. We "roomed in" on Tuesday night at the hospital to make sure we were comfortable using the oxygen and apnea monitor, as well as the feeding pump. After a long 104 day stay in the NICU, we were able to bring Noah home on Wednesday.

We have had a few hiccups the past couple nights, but things are getting better. Night 1 was sleepless as we were getting used to the apnea monitor and trying to establish a routine. Our dog, Wilson, is unsure about having a new friend in the house, but he has behaved well. Thursday morning was not so great due to Wilson having to make an emergency trip to the vet. He got a puncture wound when we let him out. Perhaps a run-in with a neighborhood possum? Wilson is currently having a weekend sleepover at the vet while he heals...

Our first family outing was to Dr. Craft yesterday. Boy was that a challenge! Juggling 3 people's morning routines is tough! We did make it successfully to the doctor's office only a few minutes late. Noah loves a car ride! The report is that Noah looks good, and weighs 7 pounds! What a little chunky man!

I think we have finally gotten into a decent home routine, and it seems that Noah is beginning to settle in nicely. Each night gets progressively better, and we actually got a little bit of sleep last night! (We aren't holding our breath.)

While we are excited to introduce Noah to all of our friends and family, we do need to delay introductions until after flu season is over. Even a little cold could put Noah back in the hospital on a ventilator, and I don't think anyone wants that! We will try to post updates and pictures when time and energy allows. :)

Tuesday, November 1, 2011

Hello again!

It has taken a couple weeks for Noah to overcome the stridor (swelling of the airway) from his hernia surgery. He is now breathing and growing well! Noah is up to 5 pounds 13.3 ounces today. His oxygen flow rate has been turned down to .5 liters, and he is taking bottles like a champ! He has had some difficulty with acid reflux, but we seem to have gotten it under control with Prevacid. Noah received his immunizations last night and is preparing for a circumcision at some point this week. We are hopeful that we will be able to have our little boy home for Thanksgiving.

Monday, October 10, 2011

On the Mend

 Last week was a challenge for Noah. Following surgery, Noah started being very stridorous (his upper airway was very swollen). As the past week progressed, his swelling reduced and he started to be the baby that we have become accustomed to. He took a bottle today and took all 15 ml with minimal difficulty. His oxygen requirement is decreased and by tomorrow or the next day he should be free from his need for oxygen. The IV is gone, Noah's choice. That's right Noah removed his own IV the other day. Noah's feedings are now entirely breast milk and his acid reflux has decreased significantly. The medication for gut motility has been decreased and he slept through the night last night. We are optimistic that he will come home soon, we hope in another two to three weeks.

Wednesday, October 5, 2011

A tough night

The night following surgery provided some challenges for Noah. It has become apparent that Noah does not respond the greatest to sedation and or intubations. The doctors during the night removed the endotracheal tube and Noah did well for a while. He then started to have difficulty moving air and the decision was then made to re-intubate this morning, indicating that he is not quite ready to be weened off of breathing support. Today will be a tougher day due to the unknown time frame of when Noah will be back to his Nasal Cannula.

Keep the Prayers coming

Tuesday, October 4, 2011

An impressive two weeks and Surgery!!

      Noah has had an impressive two weeks. He continues to eat and grow. Noah's food intake has started to increase and he has had a noticeable decrease in spells so much so that he has not had any apnea and bradycardia spells since last Thursday. Noah did have a small set back last Friday, the physicians decided that they needed an upper GI study. That showed slight acid reflux resulting in the breast milk being thickened with rice cereal and Noah being put on Zantac. Noah's breast milk volume has been increased to 2/3 of his feedings, and they are attempting 4 bottle feeds per day. Noah has also learned how to nurse! He has broken the 4 pound mark and continues to grow and gain weight.
      Today Noah had surgery to repair his bilateral hernias. Noah had an excellent physician and the outcome was the best that we could have hoped for. His recovery this afternoon was a little on the sluggish side, but after surgery he deserved a rest. He is currently on a ventilator, with plans to remove that sometime tonight or tomorrow. Feedings should resume tonight as well. Tomorrow should be better and Noah should be more active. Updates will be more regular I hope. Things sure are busy as we are trying to get ready for his homecoming sometime towards the end of the month or early November!

Tuesday, September 20, 2011

progress

This past week and a half has been real interesting for Noah. The setbacks have become fewer and fewer apart and the progress has been very steady. While Noah continues to have a feeding tube in-place the volumes of food continue to grow with his weight. Noah is currently on what they consider full feeds. For his size and weight that is 10.5 milieters an hour, since he is on continuous feeds that’s about 1.2ounces in 4 hours. Noah’s weight is now 3 pounds, 9.6 ounces by next weekend we should have a 4-pound baby.
            Noah’s color is good and his apnea and bradycardia spells have reduces significantly his longest period without a spell has been 48 hours. Last night he decided to have one spell. Some of these spells seem to be related to his on going battle with acid reflux, which is completely normal at this stage of the game. I have had to remind myself several times that” he is not supposed to even be here yet” so anything done or gained is a bonus. His doctors seem to believe that the reflux is something that he will grow out of in time.
            Noah continues to be Mr. Popularity, he now has a team of neonatal gastroenterologist following his digestion and they have placed him on antibiotics for gut motility (erythromycin) if anyone is interested. Pediatric surgery continues to follow Noah related to his inguinal hernia. Noah is fortunate to be in Roanoke, there are two excellent pediatric surgeons both have made appearances to bedside.
            Noah successfully took his first bottle at the beginning of last week and has been working with speech therapy to learn hoe to nurse and latch on. His interest level fluctuates from day to day with the bottle but he is picking up that skill. Physical therapy is also working with Noah to strengthen his muscle movements and adapt him to Newtonian physics; apparently gravity is a foreign concept for premature babies.  
Katie and I are continuously blessed to have two excellent nurses provide the vast majority of Noah’s care. Noah would not be where he is today without the diligence of Lisa Bararra, of Sherry Elmore.
There will be another post tonight that will have few words and numerous pictures.

Apologies to ALL of our loved friends and family who have supported the Flynn family and continue to do so


Cautiously Optimistic

Noah continues to make good progress this week. We have been coasting along pretty well since our last update. Noah's oxygen flow rate has been weaned down from 2.75 to 2 with minimal spells. He is still on continuous feeds, but has gotten up to 10.5 ml's an hour, which is the maximum dose for his weight. The formula calorie count has also been increased from 20 to 22. Current weight is 3 pounds 9.4 ounces! We are hoping to get to the 4 pound mark by the beginning of next week. Noah has been experiencing some reflux issues with all the formula he is getting. NICU staff say this is very common with all babies, and do not seem to be worried.

Happy Boy

I like to Kangaroo with my Daddy!

It's been a long day. I'm exhausted!

First clothes! "Handsome Little Boy"

Outfit change. Newborn sized wrap shirt looks like a huge robe! Notice the rolled up sleeves.

My new bed!

My favorite nurse, Lisa, feeding me my 2nd bottle.

Snoozin'


Mommy's two favorite boys.

Thursday, September 8, 2011

Big week for Noah






 Unsure about the bath
 Getting nice and clean
Bath complete...smells as fresh as a baby's you know what
Following the lower GI study and break from food, Noah is back eating food and this time it is on a constant basis. The NICU team has advanced his feedings slowly, and they are feeding him Elecare (formula that is fortified). Noah continues to do well on nasal cannula he is at 2.75 liters of oxygen and does not show many signs of slowing down. Noah has had a week of many firsts. Noah had his first bath, which he was unsure of at the start but turned out to love. Noah broke the three pound mark in weight. Now at 3 lb 1.6 ounces he is a heavy weight by NICU standards. Today was another first for Noah. So far he has been living in a diaper only. Today the nursing staff dressed the little guy up and he looked amazing.
Future pans consist of decreasing his oxygen, starting speech therapy to learn how to latch on to bottle and breast, starting physical therapy (for good measure) and moving into a new bed by the weekend. Enjoy the pictures and say tuned we will showcase Noah's wardrobe next time .

Sunday, September 4, 2011

Trying something new...

Noah has been at a bit of a standstill this week. The NICU staff were giving Noah a chance to rest and recover from his latest belly blow-up. The barium enema test came back showing no bowel obstructions. This is a check off the probable causes list. Noah has been on a tube to suction air out of his belly, and has been off of food since Tuesday. The doctors have decided that the cause of the problems may be that his belly and bowels just aren't mature enough to properly push things through. Noah was put back on food last night, but we are doing things a bit differently. We are starting off with Pedialite, then going to a type of formula that has very basic proteins. We may then go to weaning him back on breast milk. All this feeding will be done very slowly- continuously getting 1 ml per hour throughout the day and night. Since these feedings are going so slowly, a PICC line had to be put back in to provide extra nutrients (proteins, lipids, and TPN).


The nasal cannula has been going very well. Noah went his first 24 hours on the cannula with only one spell! He is now averaging about 2 spells a day, and mostly when the nurses are messing with him, or when he is put back in bed after Kangaroo Care. These spells are less concerning than spells he has when he is by himself. The nurses think these spells could partly be caused by the suction tube and the feeding tube going into his mouth. These are causing an increase in thick oral secretions that collect in the back of his throat, causing him to somewhat choke on his own spit. The suction tube has been removed since they started feedins again, and the feeding tube has now been placed through his nose. Now, not only can we see his face and head more clearly, we can also see his mouth without any equipment in the way!

Despite all that has gone on this week, Noah has managed to gain weight! He now weighs 2 pounds 11 ounces! He is getting to be a big boy, and is looking more and more like his daddy every day!

Tuesday, August 30, 2011

Noah, the ever changing, innovative star of pod C continues to surprise both Katie and I and the staff. Noah started the day off great and all indications pointed to the fast track to success. The afternoon turned out to be a little different from the projected game plan. Noah's belly started to distend again. This development lead the doctors to believe that he may have a minor bowel obstruction. Tonight he will have an X-ray to determine if this is in fact the case. If a bowel obstruction is seen, then Noah will get a barium enema which should flush things out.
On the plus side, Noah has said goodbye to his belly button stump, and has been decreased to a nasal cannula instead of the siPAP. This is a huge jump, and a bit scary. The hope is that Noah does well with this challenge. If he does well his road to recovery will be a little faster. We are big fans of the nasal cannula because we can see his head and face!


Sunday, August 28, 2011

Back on the Noah-coaster

The past 48 hours have been full of ups and downs for our little guy. Friday was a great day, a day that saw Noah up to full feedings and receiving fortifications in his breast milk of higher caloric fats and other essential nutrients. Things were looking great. Katie and I have become accustomed to calling prior to going to see Noah and we did just that Saturday morning. When we called, the nurse caring for Noah stated that he had a wild and not so hot Friday night. Noah had several spells and had to have his oxygen increased back to the max that siPAP would allow and he had a large vomiting episode. The ever aggressive staff in the NICU stopped his feedings, placed a tube in his stomach (to decompress it), and ordered lots of blood work and started antibiotics (just in case). Needless to say, Saturday was a bit of a downer for our family. Labs showed that Noah needed a blood transfusion.....

What a difference 24 hours makes! Sunday morning Katie and I came to see Noah to find out that he had an excellent night. His belly, which was full of air, had reduced back to a normal "squishy" belly and his color was much improved largely in-part to the blood transfusion. Sunday afternoon showed more improvements. Noah was able to have the feeding tube placed again, and got to start back on a third of the full feedings that he was on. Kangaroo care resumed and Noah received a bonus. He was able to do his first episode of non-nutritive nursing. Essentially Katie is now Noah's new favorite pacifier. Lastly, the oxygen rate has been reduced now to 15 breaths per minute to supplement what Noah is doing on his own.

Tomorrow is a new day, and optimism is high in the Flynn house. Let the Noah-coaster continue to roll.

Thursday, August 25, 2011

Smooth sailing

Noah has had a great week! I think he is finally getting over his bacterial infection and belly troubles. He went off his antibiotics on Monday and shows no more signs of infection. Noah has decreased his siPAP rate to 13 as of last night. This means he is getting 13 breaths per minute by the machine and the rest is up to him. This rate had been 20 earlier in the week. He has had minimal to no "spells" in the past couple days. We hope to see him back on the C-PAP soon. Noah is also gaining weight! He is now unto 2 pounds 8.6 ounces. Feeds have been increased to 16mL of milk. Nurses have begun fortifying the milk again to add more calories. The fortified they are using this time is different from last time, and will hopefully be more gentle on his tummy. Noah continues to enjoy Kangaroo Care with both his Mommy and Daddy. He is alert and active during this time, and has started smiling often when he is awake. We have yet to capture this on camera. His eyes are also open a lot more these days, and he passed his first eye exam yesterday on his 4 week birthday! Yay Noah!

Sunday, August 21, 2011


Noah is back on the path that he needs to be. As of yesterday he weighed 2 lbs. 6 oz. And was highly alert! His eyes opened bigger than we had ever seen. He is still having spells but the frequency has decreased. He had one during the night. His feedings have resumed and he is going back up slowly, one Ml every 12 hours. Noah has has some acid reflux caused by the siPAP/cPAP that slightly distends his belly and creates pressure that the food can't compete against. Feedings have been placed on a pump to allow him a chance to digest all that good food.

Thursday, August 18, 2011

Day 22

Noah had an interesting day today full of ups and downs. This morning we found out that Noah starting to have more "spells" during the night, meaning that his brain was not telling his lungs to breathe. This is a minor setback because Noah is not supposed to be using his lungs this early. He remains on siPAP with 20 supplemental breaths instead of the previous 10. He will overcome this.
On a more positive note, Noah looks great and is gaining weight. He is now 2 lbs. 6 oz and 14 and 3/4 inches long. He started his feedings again and they are increasing them pretty rapidly. This afternoon he was up to 6 ml per feeding. If all goes well by tomorrow evening or Saturday morning, Noah should be back up to full feeds (1/2 ounce).

Wednesday, August 17, 2011

Improvements

Tonight will be Noah's three week birthday !!!!!
Many of you may know that Katie and I returned to work this week in efforts to grant Katie a full maternity leave when Noah finally comes home. We are both visiting daily, and it has been easy for me to go up and see the little man on my lunch break. Katie sees Noah at the end of her day.

Monday evening he started to have a few more spells, indicating that he was not quite ready to leave the CPAP machine behind. He will likely need a little more time to allow his lungs to develop (in the grand scheme of things not an issue).

A small set back that Noah had related to his bowel being distended (a result from the milk allergy) created other small problems. The most significant of these issues were that they collected a blood culture from Noah that grew a Gram Positive cocci bacteria. This was treated with antibiotics. Coupled with not being able to eat breast milk for the past two days has created a tough time for Noah, but he is coming through it wonderfully.

Noah had a good day yesterday all things considered and was comfortable while he continues to recover from his first bacterial infection. For good measure, the physicians caring for Noah did a Lumbar puncture to check for meningitis. At this time all indications are that there is no sign of meningitis which is a huge relief.

This afternoon /evening Noah should be started back on breast milk and start to get back into what the staff call a feeder/grower stage. The fatter he can get, the less "interesting" he will become for the NICU staff and the more likely he will get sent home.... in October.

The Prayers, thoughts, support, and shout-outs ect. continue to be appreciated.

Love,
Flynn Family

PS. More pictures to follow in the next day or so. I know some of you have picture withdraw

Sunday, August 14, 2011

Minor setback

Today was a big challenge for Noah. This is the first real setback that he has had. Yesterday Katie and I noticed that he had more swelling in his belly than normal and his oxygenation was not as good as it had been in the previous days. Katie was at the 7:00 vist time yesterday and Noah had an episode of vomiting and was generally upset. Due to the bloated abdomen, a chest X-ray was obtained and it showed signifiant gas patterns in his intestines. There was also an inguinal herina seen in the left lower quadrant. To remove the air that is in his intestines, there is a larger tube in his stomach connected to suction to decompress the belly. Sadly his feedings have been stopped until his belly returns to normal size (2-3)days at the worst.Noah will go back on intravenous fluids- lipids, protein solution, and TPN (baby Gatorade) until he can be reintroduced to milk. Noah also received a blood transfusion today for a low hemoacrit. This is a result of medical staff collecting blood samples and his bone marrow not being mature enough to reproduce the blood taken. For all the discouraging stuff there was good news for the day- Noah moved from siPAP back to C-PAP. This indicates that his lungs are getting stronger. In another week or two he should be close to being on a nasal cannula.

Friday, August 12, 2011

A mixed results day

Today was a good day overall for Noah. He is now at 16 ml per feeding and is tolerating it well. The volume has been so much so fast that he started to have a small amount of reflux. To combat that, the nurses have placed his feedings on a pump and he eats over 30 minutes. Noah was placed back on siPAP because his work of breathing was placing an unsafe demand on his little lungs. SiPAP will allow Noah's lungs time to grow more without stress and the muscles that assist in breathing will grow also. Noah does well on the siPAP and this is not the worst thing in the world. It is quite common for preemies to go back and forth between siPAP and C-PAP.

Noah is no longer on any supplemental feedings. Gone are the days of TPN (baby Gatorade) and there is no more lipid solution infusion. Noah has had the PICC line removed and now has no IV access! This makes Kangaroo care less difficult for Katie, as there is one less line to deal with.

Weight gain, fortified milk, and poop!

The 11th was a good day for Noah, he continues to show signs of strength and growth. With weight gain of a whole ounce (total of 2 lb 0.5 oz), breast milk started to get fortified. Milk is now 24 calories fortified per feeding. Breast milk is normally 20 calories per ounce. Noah is receiving a total of 28 additional calories daily. Poop is now yellow not black, and there is volume.


Daddy's first Kangaroo Care

Mommy's chest isn't this hairy!
The day had special significance for me, as it was the first opportunity I had to hold my little boy. It was the best experience of my entire life.

Thursday, August 11, 2011

Mile stone 2weeks old

Happy 2 week birthday to Noah!!! Apologies to all the loyal Noah followers for the lapse in coverage concerning Noah.
That being said.... Noah has had a good few days. He had a period of gaining weight and then lost a few ounces. The fluid loss was related to having too much fluid in his little body. Sunday night they did a chest X-ray that revealed a "hazy" lung silhouette. He was given a medication called Lasix that causes a diuretic effect and removes fluid. Yesterday he started to get some of that weight back. We are getting close to a milestone for Noah. His feedings have been increased and continue to increase in the volume that he is receiving. This morning he should be at 13 ml of milk per feeding. Another big advancement on the feeding front is the addition of fortification to the feedings. In addition to the milk they are adding extra calories to the milk. It should increase his weight and soon. He still remains on c-PAP with pressures of 5-6. Pressures of 4 will mean that he can graduate to a nasual cannula. Today should be a good day for us all. Updates will continue,more pictures to follow this evening.

Sunday, August 7, 2011

Days 10 and 11

Day 10 for Noah was a decent day. The nursing staff received orders to increase the feeding times and the amount of feedings. Noah now receives feedings every three hours and they are adding 1 ml every 12 hours until they get to half an ounce (16 ml). There was a sight backward step with oxygenation. Noah has been doing so well for the past week and a half that he got a little tired yesterday and required supplemental oxygen. Kangaroo care was not allowed yesterday due to the oxygenation issue.

Day 11 turned out to be an excellent day for Noah. He now weighs a whopping 2 lb. 2 oz. and is starting to fill out nicely. Noah is getting a fat little tummy courtesy of scrumptious breast milk provided by the Flynn Dairy Farm and Medela. He is requiring less supplemental oxygen than yesterday, and is very alert. Noah is opening both eyes and tracking movement of those around him. When he cries (which is not often) he now sounds like a baby and not a cat.  During the morning visit Katie got to Kangaroo with the little guy again this was a satisfying bonding experience for both Katie and Noah. Noah is now up to 6 ml of milk and at 1:00 am he will increase to 7 ml.
We are anxiously waiting to see the many good things that day 12 will bring for our little guy. We are grateful for the continued prayers and encouraging words from family and friends.
I'm free! But only for a minute while they change my mask.

I'm rocking this headgear!

Saturday, August 6, 2011

Day 9

Noah's digestion has been tolerating things so well that they have decided to increase his feedings from every 4 hours to every 3 hours. He still gets the same amount of milk, but an extra feeding a day. We think we can see his little tummy and hands filling out as he gains a little more weight. He is now back up to birth weight at 1 pound 13 ounces.

Since being on the new biPAP machine, Noah is working a bit harder to breathe. Because of this, his supplemental oxygen levels have had to be turned up a bit. He is still breathing on his own, though!

We did not get to do Kangaroo care this evening because his oxygen levels were low and his care times have been rearranged due to his new feedings. We hope to be able to pick back up tomorrow.

Thursday, August 4, 2011

8 days old

Today was a rough day for our little man. Because he was taken off of the siPAP machine yesterday, he is having to work harder to breathe. his doctors and nurses think he is up to the challenge. This hard work can cause "spells" where his heart rate and oxygen levels drop. These spells are common among preemies, and Noah usually only as a few a day. Regardless, it is quite scary for Mom and Dad. As Noah gets used to the new breathing machine, the spells will hopefully decrease. Phototherapy resumed until lab levels improve. This means Noah gets to wear those cool sunglasses again while he is "sunbathing!"

On a more positive note, we were informed that Noahs head ultrasound came back negative for any brain bleeds! The IV in his scalp also came out yesterday, which is one less wire to get tangled up in. Digestion continues to improve, and he had 3 unaided poopy diapers today! Who knew we would ever get so excited about diaper changes!

Wednesday, August 3, 2011

One week old

I love lying on my belly!!!

My first art work 
Noah is one week old today! What a blur of a week it has been. Yesterday was a particularly good day for Noah. Last night Noah had the hiccups and it was the cutest thing we have seen him do thus far. There is a 30 second video of this- pretty funny if you ask me.  Noah also had his first arts and crafts session- hand and footprints! His crying is getting stronger and he is receiving more breast milk during his feedings(increased from 1 ml to 2 ml yesterday and up to 3 ml today). He had his first poopy diaper without the help of a suppository this evening. The siPAP breathing machine has been discontinued, and Noah is now on BiPAP. This provides him with pressure on his lungs, but does not give him any additional breaths- a step in the right direction! Noah also appeared to be more active today, opening his eyes much more and looking around. Kangaroo care continues to be the best hour of the day for the whole family.

Tuesday, August 2, 2011

Day 5 (one day late)

Subtle changes today for Noah. The best noticeable change was when we discovered that Noah kept a feeding down and digested it. This may seem like a small victory,but in reality this is huge for Noah. This indicates that his digestive tract is starting to get the idea. We are optimistic that we will have a big diaper change tomorrow. In other news, they (the doctors) were able to decrease his supplemental oxygen rate from 10 down to 8. Hopefully day 6 will continue to show us more improvements. Stay tuned for our next exciting episode!!

Monday, August 1, 2011

Day 4 late addition

Mommy and I love being Kangaroos! :)

Sleeping on my belly comforts me.

Time for a bedtime story!
The end of July seemed to agree with Noah. 4 days in and he is doing very well. Noah was on 21% oxygen today, which is room air/oxygen for the rest of us who have fully developed lungs. There continue to be ongoing issues with digestion. Poop occurs with the assistance of a glycerin suppository but no real work on his own yet. The best part of the day occurred with more Kangaroo time between Katie and Noah. Noah was against Katie's chest and he fell fast asleep in the safety of his mothers arms. After it became obvious that Noah was content and would sleep, I took the opportunity to read him a couple bedtime stories....

Saturday, July 30, 2011

Noah's Journey Day 3

Snuggling with Mommy

Kangaroo Care
Today was another day of firsts for Noah. His heart rate has stayed constant and oxygenation levels are staying constant. Blood pressures are also staying within normal limits. The massive weight gain from a day ago has decreased, as the majority of that gain was fluid that has been lost deep in the recesses of the diapers. Feeding has hit a small snag. Digestion has not caught on as well as we would like, however the bowels are moving and Noah had his first "messy" diaper. Fear not friends I have the picture! The milk production is in full swing and right now Katie is staying  ahead of Noah and his demand for food. When we saw Noah at lunch, the nurse took out the IV in the umbilical region. During the 5pm care time we were given a real treat. With the umbilical IV now out of Noah, we were allowed to hold him for the first time since birth. Katie was able to participate in "Kangaroo care" where mother and baby are skin to skin. This is an amazing experience. Noah and Katie both fell asleep during this activity and looked at peace. Tomorrow is a new day and there are many challenges for Noah to master.

Friday, July 29, 2011

No room for a womb, day two

Daddy's little man

Under the anti-jaundice lights- My future's so bright I gotta wear shades!

I've got my daddy's big feet <3
24 hours post delivery and already changes are numerous. During the night Noah has had several Arterial blood gas (ABG) levels drawn and has improved to the point that ventilator assistance was deemed no longer necessary. Noah was placed on C-PAP for respiratory support and was only on supplemental oxygen. Photo-therapy continues and Noah is starting to look Caucasian and no longer red... there goes the minority scholarship for the worlds first completely red child. The largest surprise today was weight gain!!!! From 1lb 13oz to 2lb 1.2oz, but here's the catch- Noah will loose some of that weight because right now proteins and lipids are the major IV solutions with the addition of TPN this morning (baby Gatorade). Heart rate continues to to be strong in the 150's-170's, blood pressure is great with the main focus being on mean arterial pressure (has to be equal to or greater than the gestational age).  Urination has been huge as well. The diapers are approximately 3.5 inches square and heavy as sin. The most comical part of the day is diaper change.
The one positive/negative for the day was Noah had his first colostrum (preview to breast milk), later this afternoon stomach aspiration revealed more bile, meaning that digestion was not nearly where it needed to be. This just means Noah needs more time to develop his digestive tract. There may be an enema in Noah's future to help get things flowing. Keep up the prayer chains and warm wishes. We feel so blessed to have so much love and support from our family, friends, and "fans!"

Love,
Katie, Peter, and Noah

Thursday, July 28, 2011

Day 1

Today was a good day for Noah and for Mom. Katie was able to ambulate after surgery and is feeling better with the assistance of modern chemistry. Noah was weened off of the ventilator and is now on CPAP for respiratory support. Tomorrow we start Lipid and TPN feedings and continue photo-therapy to avoid Jaundice. More pictures to follow on day 2, keep the prayers and support for Noah and family coming the NICU is pleased so far to the good progress that is being made

11 weeks early

July 27 2011, was a huge reality check for Peter and Katie Flynn who found out that the baby that they were expecting on October 12, 2011 would be arriving very early. Lab testing revealed  that Noah had growth restrictions and decreased movement. a cesarean section was scheduled and at 8:56 pm Noah Sperry Flynn was born weighing 1 pound 13 ounces and measuring 13.5 inches. The placenta and cord that should have supported Noah were not optimal and were approximately  2/3 smaller than than they should have been. Birth was successful and Noah was stabilized and taken to NICU.